Monday, January 11, 2010

Today is a Sad, Sad Day


I heard the news this morning and fell to my knees and cried. I gave my Little One an extra big hug and held her for a very long time.

Lisa (a friend of mine from when I lived in Toronto, but now lives in Texas) and her husband just lost their son this morning to a terrible disease called MLD. I had never heard of Metachromatic Leukodystrophy before and I have been following Ryan's journey since he was diagnosed.

"Ryan was diagnosed with MLD at the age of 33 months.Metachromatic Leukodystrophy is a progressive genetic metabolic disorder that affects the neurological system. There is no known cure and his condition is too progressed for him to even be considered for a Bone Marrow Transplant."

He received his Angel Wings early this morning.

Thoughts and prayers are with Lisa, Jerry and their family.
Rest in peace, sweet Ryan.

16 comments:

Maria said...

How awful.. I am in tears reading this I don't think anything could be worse that the loss of a child.. my heart goes out to them.

hotmommy said...

i am so sorry for your friend's loss. i agree with maria that i cannot think of anything worse or more difficult than losing a child. my heart also goes out to your friend and her family.

took me by surprise chris ; as your posts are normally funny and upbeat..

C said...

Maria:
I know :( My heart goes out to them too.

C said...

HM:
Makes one remember to never take a single moment for granted, doesn't it?

caninecologne said...

I'm so sorry to hear of your friend's untimely loss.

E said...

I'm so sorry, Christine. My prayers are with Lisa and her family. He looks like he was a little treasure.
xo
e.

Jackie said...

God Bless the family and let them find peace someday. There are no more words.

C said...

Canine:
It's just so hard to imagine losing a child so young...or losing a child period. Thinking of my friend and her family and hoping for all the strength and support possible for them.

C said...

E:
Have you ever heard of MLD before? I remember mentioning it to you and Super Amazing Mommy when you were at my place on Saturday.

C said...

Jackie:
So true. There are no more words possible to say at a time like this. At least he is in a good place and without pain or suffering now. For those who have to live without him, I cannot even imagine what they are going through.

E said...

Hadn't heard of it before you mentioned it. It must be a very rare thing.

J at www.jellyjules.com said...

That is terrible news. I'm so sorry.

bernthis said...

this is heartbreaking. Please, please tell his parents my thoughts and prayers are with them

C said...

E:
I hadn't heard of it before my friend told me about it. It must be pretty rare. So sad :(

C said...

J:
I never know what to say at moments like this. When my aunt (whom I was very close to) passed away right before our eyes, I was pretty numb. At the visitation and then at the funeral, when people tried to offer their condolences, I don't even think any of it registered.

Though the loss and the pain of losing someone dear is something that is not easy to deal with, I imagine it is even more so when it is your own child...or parent.

C said...

bernthis:
Thank you for visiting my little 'ol blog. I will make sure to tell Lisa and family that there are many people out there thinking of them.

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City girl moves to the country, falls in love, and marries a farmer. She tries to incorporate her city ways with her new country lifestyle and blogs to keep in touch with friends, family & students who live far, far away :) Can this city girl go country? Watch as she learns all sorts of exciting things about life on the farm and in a small rural community. *UPDATE* We are now parents! Our baby girl was born on Nov. 11, 2008 (at 28 weeks gestation- 12 weeks premature, but she's quite the trooper)!!!
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